We invite stories from children and adults with neuromuscular disease, their family members, and caregivers as well as MDA volunteers. We are specifically looking for the following types of stories that are relevant to living with neuromuscular disease or caring for or supporting those who are.

My Advocacy Story

Advocacy takes many shapes: legislative action, grassroots efforts, petitioning for a cause, self-advocacy, and more. Tell us about a time when you felt compelled to act, and stood up for yourself or others.
 

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My Meaningful Story

Life is full of meaningful moments, both small and large. Tell us about an impactful moment, an event or realization that shaped your life, or how you set and worked towards a goal.
 

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My Diagnosis Story

Tell us what the journey was like when you received a neuromuscular disease diagnosis, how you processed this news, where you are on this journey, or how living with a diagnosis impacts your day-to-day life.
 

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My Summer Camp Story

A highlight of each summer for many, camp is an experience that has a profound impact on campers and volunteers alike. Tell us a story that highlights what life is like at MDA Summer Camp.
 

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